16 Things I Would Want If I Got Dementia

August 23, 2016 in Our News & Bulletins by Anchor Health Care




I came across this and wanted to pass it on to our readers.  The author is not known it just says “A heartfelt wish list from a dementia care worker.

Rules for a Good Life

  • If I get dementia, I want my friends and family to embrace my reality. If I think my spouse is still alive, or if I think were visiting my parents for dinner, let me believe those things I will be much happier for it.
  • If I get dementia, I don’t want to be treated like a child.  Talk to me like the adult that I am.
  • If I get dementia, I still want to enjoy the things that I’ve always enjoyed.  Help me find a way to exercise, read and visit with friends.
  • If I get dementia ask me to tell you a story from my past.
  • If I get dementia, and I become agitated, take the time to figure out what is bothering me.
  • If I get dementia, treat me the way that you would want to be treated.
  • If I get dementia, make sure that there are plenty of snacks for me to enjoy.
  • If I get dementia, don’t talk about me as if I am not in the room.
  • If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day 7 days a week.  It’s is not your fault, you’ve done your best.  Find someone who can help you, or choose a great new place for me to live.
  • If I get dementia, don’t act frustrated if I mix up names, events or places.  Take a deep breath.  It’s is not my fault.
  • If I get dementia, and I live in a dementia care community, please visit me often.
  • If I get dementia, always make sure I always have my favorite music playing within earshot.
  • If I get dementia, and I like to pick up items and carry them around, help me to return those items to their original places.
  • If I get dementia, don’t exclude me from parties and family gatherings.
  • If I get dementia, know that I still like receiving hugs or handshakes.
  • If I get dementia, remember that I am still the person you know and love.

I found this to offer a lot of great advice to people who are caregivers for people with dementia.

Bob Zangas

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